Parent Panel Discussion: What We Wish We’d Known
This panel discussion will be moderated by Cherie Monarch, one of the leaders of the organization, MAED (Mothers Against Eating Disorders) who have loved ones in recovery or have lost a loved one to an eating disorder. They will discuss information that they wish they had known when their child was experiencing an eating disorder, and will answer questions from parents and loved ones attending this discussion.
About our Panel Speakers
Cherie Monarch entered the eating disorder community when her youngest daughter was diagnosed with anorexia when she was 15, almost 10 years ago. Due to failure of Blue Cross to provide treatment coverage, Cherie and her family had no option but to engage in FBT at home in an effort to save her daughter’s life. Chérie, her husband and her daughter completed a one-week intensive training program for FBT with Dr. Walter Kaye at UCSD. In fact, they were the very first family to ever complete this program. However, this would not be the end of their journey. Today, her daughter is solidly in recovery and is getting ready to graduate as a nurse practitioner. Chérie is now fulfilling her vow to help other families battling eating disorders. Cherie has been married for 30 years and has two daughters. She has owned her own real estate business since 1987 and at one point had over 20 employees. Cherie’ is very active in the eating disorder community and has led many advocacy events. Cherie also serves on the board for the Alliance for Eating Disorders Awareness, a national eating disorder nonprofit. Cherie was recently awarded the National Mom Making a Difference Award for 2017 for her work with eating disorders and manages the five Mothers Against Eating Disorders MAED Facebook groups with the founder, Debra Schlesinger.
Trina is the mom of two teenaged girls. Her youngest daughter was diagnosed in March 2016 at the age of 14 with Anorexia and later with Anorexia Binge/Purge subtype. Over the past 18 months, Trina's daughter has been in treatment for both her eating disorder and comorbids of anxiety, depression, PTSD and BPD. This complex diagnosis has led to treatment at all levels of care including Inpatient, Residential and PHP/IOP that focused on ED, DBT, and mood regulation at different times in an attempt to meet all of her daughter's needs. Her daughter is currently in a long term residential treatment facility (or therapeutic boarding school). Trina co-owns Derby Lite, LLC which offers pre-packaged fitness roller skating classes to skater entrepreneurs. She also loves practicing piano, and long walks with her dog.
Becky Henry became a professional life coach in the beginning days of her daughter's illness which began over 17 years ago. She says that the coaching she got during her training saved her from rocking in a corner. She had no support and has now made it her life mission to make sure parents and other caregivers are taught how to practice self care so that they can better support their child in recovery. Becky tried for two years to get her daughter diagnosed, but lack of training of health care professionals on all fronts made that impossible. Her daughter did both residential and outpatient treatments. Her daughter improved but lingers in an ``almost recovered`` state due most likely to the delay in diagnosis and treatment.
Tawny Miller’s family was thought of as the ``all american family.`` They appeared to have it all together. What no one knew was that below the surface, they were falling apart, being taken down by years of trying to move through the world of eating disorders. Trying to keep one child alive and everyone sane. It was a journey that would take a decade and bring the entire family to the brink. Barely holding on through ED-behaviors. trauma, alcohol and drug abuse, suicidal thoughts and attempts, anxiety and depression. Tawny made a promise to God while sitting in the ICU with her daughter that, if he would only help her find a way to help her child, she would do what she could to help other parents and families battling the illness,
Tawny worked as the manager of a technical unit for an educator's insurance company for 25 years until she left to help her daughter transition out of treatment after several unsuccessful attempts. Tawny is currently a moderator for MAED and an Admin and creator of MAED Sacred Space (an ED-free zone for moms living with children with an eating disorder) and FAED (a MAED group for male caregivers).
Joan and her family were pulled into the eating disorder world about six years ago when her adult 19-year-old daughter was a sophomore college, 27 hours from home. Joan and her family were shocked when her daughter asked to start treatment for her eating disorder. They had no clue she even had an eating disorder. Her daughter had experienced eating issues since the day she was born. Food allergies, food intolerance, etc. you name it. She was a very picky eater, but since she was born a large baby and was always off the growth charts, they were dismissed by every doctor and therapist they visited. Getting her daughter to eat was always a challenge. Fast-forward to 19 years later, and they now know she had ARFID or selective eating. that apparently morphed into anorexia with the binge purge subtype around 9 years ago. Joan navigated the entire ED community while her daughter was an adult and living in a separate state. Her daughter has been in six different states, seven different facilities and is currently strong in recovery at age 25. She has graduated college, is working a full-time job and is navigating life as a recovered adult. Joan has become active in advocating for eating disorders and parental involvement. Joan has two other children, a daughter and a son. She and her husband are happily married for 32 years. She is a professional architect and has run her own business for the past 20 years.
Quote by Carole Bennett